A Pediatric-Adult Provider Dyad Care Model Improves Transition From Pediatric to Adult Healthcare For Youth with Childhood-onset Systemic Lupus Erythematosus

Systemic Lupus Erythematosus

Lived Education Experience of Young Adults with Childhood- and Adult-onset Systemic Lupus Erythematosus: A Multi-Centre Canadian Qualitative Study

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Nishat F, Golding M, Merrill K, Protudjer JLP, Woodgate RL, Kaur R, Lacaille D, Oguzoglu U, Touma Z, Peschken C, Stinson JN, Lim LSH

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Systemic Lupus Erythematosus

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Sanchez-Rodriguez A, Meade-Aguilar JA, Yang JX, Figueroa-Parra G, Hanson AC, Langenfeld HE, Thanarajasingam U, Chamberlain AM, Greenlund KJ, Barbour KE, Crowson CS, Duarte-García A

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Systemic Lupus Erythematosus

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

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Sadun RE, Cooper JC, Belot A, Avcin T, Aggarwal A, Ainsworth J, Akinsete A, Ardoin SP, Beresford MW, Bortey L, Brunner HI, Chang JC, Ciurtin C, Daftary A, Eberhard B, Feldman CH, Hedrich CM, Hersh AO, Hiraki LT, Isenberg DA, Kamphuis S, Knight AM, Lambert L, Levy DM, Marks SD, Maxwell N, Migowa A, Moore K, Ozen S, Ramsey-Goldman R, Ravelli A, Reeve BB, Rubinstein TB, Saad-Magalhaes C, Sawhney S, Schanberg LE, von Scheven E, Scott C, Son MB, Tony G, Weitzman ER, Wenderfer SE, Woodside A, Lewandowski LB, Smith EM, CARRA SLE Committee and PReS Lupus Working Party

doi: 10.1136/ard-2024-226528

Systemic Lupus Erythematosus

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Ann Rheum Dis

Sadun RE, Cooper JC, Belot A, Avcin T, Aggarwal A, Ainsworth J, Akinsete A, Ardoin SP, Beresford MW, Bortey L, Brunner HI, Chang JC, Ciurtin C, Daftary A, Eberhard B, Feldman CH, Hedrich CM, Hersh AO, Hiraki LT, Isenberg DA, Kamphuis S, Knight AM, Lambert L, Levy DM, Marks SD, Maxwell N, Migowa A, Moore K, Ozen S, Ramsey-Goldman R, Ravelli A, Reeve BB, Rubinstein TB, Saad-Magalhaes C, Sawhney S, Schanberg LE, von Scheven E, Scott C, Son MB, Tony G, Weitzman ER, Wenderfer SE, Woodside A, Lewandowski LB, Smith EM, CARRA SLE Committee and PReS Lupus Working Party

doi: 10.1136/ard-2024-226528

Systemic Lupus Erythematosus

Systemic lupus erythematosus-disease activity score remission and low disease activity were similarly associated with patient-reported outcomes compared with definition of remission in systemic lupus erythematosus remission and lupus low disease activity state

Rheumatology (Oxford)

Nakanishi E, Matsushita M, Minowa K, Tada K, Kawamoto T, Kusaoi M, Amano H, Kon T, Morimoto S, Ikeda K, Suzuki S, Nozawa K, Yang KS, Matsudaira R, Katagiri A, Tsushima H, Urasaki W, Nojiri S, Yamaji K, Tamura N

doi: 10.1093/rheumatology/keaf349

Systemic Lupus Erythematosus

Genetic variability associates with ancestry, age at disease onset, organ involvement and disease severity in juvenile-onset systemic lupus erythematosus

Clin Immunol

Natoli V, Charras A, Hasoon MSR, Jorgensen AL, Smith EMD, Gutiérrez EC, Beresford MW, Hedrich CM, UK JSLE Cohort Study Group

doi: 10.1016/j.clim.2025.110540

Systemic Lupus Erythematosus

Factors associated with delay in the diagnosis and treatment of systemic lupus erythematosus in adult patients: a systematic review

Rheumatology (Oxford)

Ramírez-Flores MF, Hernandez-Garduno A, Quintana R, Fuentes-Silva Y, Nieto R, Cano-Gámez T, Ferreyra L, Ceballos MF, Gastelum-Strozzi A, Pons-Estel BA, Pons-Estel G, Peláez-Ballestas I

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Systemic Lupus Erythematosus

Association between discontinuity of care and patient trust in the usual rheumatologist among patients with systemic lupus erythematosus: a cross-sectional study

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Katayama Y, Miyawaki Y, Shidahara K, Nawachi S, Asano Y, Katsuyama E, Katsuyama T, Takano-Narazaki M, Matsumoto Y, Oguro N, Yajima N, Ishikawa Y, Sakurai N, Hidekawa C, Yoshimi R, Ohno S, Ichikawa T, Kishida D, Shimojima Y, Sada KE, Wada J, Thom DH, Kurita N

doi: 10.1186/s13075-024-03428-0

Systemic Lupus Erythematosus

Loneliness and social isolation among middle-aged and older adults with systemic lupus erythematosus: a single center cross-sectional study

Rheumatology (Oxford)

Lieber SB, Shea Y, Gottesman SP, Smole A, Nagpal NG, Nguyen J, Chung A, Sun D, Navarro-Millán I, Reid MC, Mandl LA

doi: 10.1093/rheumatology/keaf342

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Lived Education Experience of Young Adults with Childhood- and Adult-onset Systemic Lupus Erythematosus: A Multi-Centre Canadian Qualitative Study

Clinical Presentation, Care Pathways, and Delays in Access to Specialized Care in Patients With Systemic Lupus Erythematosus: A Study From Lupus Midwest Network (LUMEN 💡)

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

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