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Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Ann Rheum Dis

Sadun RE, Cooper JC, Belot A, Avcin T, Aggarwal A, Ainsworth J, Akinsete A, Ardoin SP, Beresford MW, Bortey L, Brunner HI, Chang JC, Ciurtin C, Daftary A, Eberhard B, Feldman CH, Hedrich CM, Hersh AO, Hiraki LT, Isenberg DA, Kamphuis S, Knight AM, Lambert L, Levy DM, Marks SD, Maxwell N, Migowa A, Moore K, Ozen S, Ramsey-Goldman R, Ravelli A, Reeve BB, Rubinstein TB, Saad-Magalhaes C, Sawhney S, Schanberg LE, von Scheven E, Scott C, Son MB, Tony G, Weitzman ER, Wenderfer SE, Woodside A, Lewandowski LB, Smith EM, CARRA SLE Committee and PReS Lupus Working Party

doi: 10.1136/ard-2024-226528

Systemic Lupus Erythematosus

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Ann Rheum Dis

Sadun RE, Cooper JC, Belot A, Avcin T, Aggarwal A, Ainsworth J, Akinsete A, Ardoin SP, Beresford MW, Bortey L, Brunner HI, Chang JC, Ciurtin C, Daftary A, Eberhard B, Feldman CH, Hedrich CM, Hersh AO, Hiraki LT, Isenberg DA, Kamphuis S, Knight AM, Lambert L, Levy DM, Marks SD, Maxwell N, Migowa A, Moore K, Ozen S, Ramsey-Goldman R, Ravelli A, Reeve BB, Rubinstein TB, Saad-Magalhaes C, Sawhney S, Schanberg LE, von Scheven E, Scott C, Son MB, Tony G, Weitzman ER, Wenderfer SE, Woodside A, Lewandowski LB, Smith EM, CARRA SLE Committee and PReS Lupus Working Party

doi: 10.1136/ard-2024-226528

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Menopausal hormone therapy and the risk of systemic lupus erythematosus and systemic sclerosis: a population-based nested case-control study

Rheumatology (Oxford)

Patasova K, Dehara M, Mantel Ä, Bixo M, Arkema E, Holmqvist M

doi: 10.1093/rheumatology/keaf004

Systemic Lupus Erythematosus

Clinical Presentation, Care Pathways, and Delays in Access to Specialized Care in Patients With Systemic Lupus Erythematosus: A Study From Lupus Midwest Network (LUMEN 💡)

Arthritis Care Res (Hoboken)

Sanchez-Rodriguez A, Meade-Aguilar JA, Yang JX, Figueroa-Parra G, Hanson AC, Langenfeld HE, Thanarajasingam U, Chamberlain AM, Greenlund KJ, Barbour KE, Crowson CS, Duarte-García A

doi: 10.1002/acr.25445

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Navigating the diagnostic journey of epidermolysis bullosa - a qualitative study on the lived experiences and needs of parents and patients

Br J Dermatol

Korte EWH, Baardman R, Pool G, Duipmans JC, van den Akker PC, Bolling MC

doi: 10.1093/bjd/ljae242

Further Publications Dermatology

Growing up with juvenile vulvar lichen sclerosus, the experiences and care needs of adult women with lichen sclerosus since childhood: a qualitative exploration

Br J Dermatol

Morrel B, Kampherbeek JHJ, Ten Kate-Booij MJ, van der Avoort IAM, van Hees CLM, Wigny KMGJ, Burger CW, Pasmans SGMA, Lugtenberg M

doi: 10.1093/bjd/ljae203

Systemic Lupus Erythematosus

Treatment of systemic lupus erythematosus: Analysis of treatment patterns in adult and paediatric patients across four European countries

Eur J Intern Med

Du M, Dernie F, Català M, Delmestri A, Man WY, Brash JT, van Ballegooijen H, Mercadé-Besora N, Duarte-Salles T, Mayer MA, Leis A, Ramírez-Anguita JM, Griffier R, Verdy G, Prats-Uribe A, Pacurariu A, Morales DR, De Lisa R, Galluzzo S, Egger GF, Prieto-Alhambra D, Tan EH

doi: 10.1016/j.ejim.2024.08.008

Systemic Lupus Erythematosus

Use of belimumab in treating patients with systemic lupus erythematosus: a single-center, real-world retrospective study

Arthritis Res Ther

Su Z, Zhang C, Gao C, Li C, Li R, Zheng Z

doi: 10.1186/s13075-024-03389-4

Systemic Lupus Erythematosus

Association between discontinuity of care and patient trust in the usual rheumatologist among patients with systemic lupus erythematosus: a cross-sectional study

Arthritis Res Ther

Katayama Y, Miyawaki Y, Shidahara K, Nawachi S, Asano Y, Katsuyama E, Katsuyama T, Takano-Narazaki M, Matsumoto Y, Oguro N, Yajima N, Ishikawa Y, Sakurai N, Hidekawa C, Yoshimi R, Ohno S, Ichikawa T, Kishida D, Shimojima Y, Sada KE, Wada J, Thom DH, Kurita N

doi: 10.1186/s13075-024-03428-0

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Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Menopausal hormone therapy and the risk of systemic lupus erythematosus and systemic sclerosis: a population-based nested case-control study

Clinical Presentation, Care Pathways, and Delays in Access to Specialized Care in Patients With Systemic Lupus Erythematosus: A Study From Lupus Midwest Network (LUMEN 💡)

Navigating the diagnostic journey of epidermolysis bullosa - a qualitative study on the lived experiences and needs of parents and patients

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