Navigating the diagnostic journey of epidermolysis bullosa - a qualitative study on the lived experiences and needs of parents and patients - Articles - Dermatology · Immunology · Rheumatology

Further Publications Rheumatology

Qualitative interview study of rheumatology patients' experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs

BMJ Open

Silverthorne CA, Jones B, Brooke M, Coates LC, Orme J, Robson JC, Tillett W, Dures E

doi: 10.1136/bmjopen-2023-075871

Further Publications Dermatology

A qualitative interview study exploring patient views and experiences of treatment for hidradenitis suppurativa in the UK

Br J Dermatol

Howells L, Leighton P, Thomas KS, Collier F, Gibbons A, Harris C, Hood K, Riaz M, Rodrigues J, Stanton H, Thomas-Jones E, Ingram JR

doi: 10.1093/bjd/ljaf046

Further Publications Dermatology

The quality-of-life impact of Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) on patients' lives: An interpretative descriptive qualitative study

Br J Dermatol

O'Reilly P, Walsh S, Bunker CB, Ryan S, Natella PA, Colin A, Simpson J, Barry LA, Meskell P, Dodiuk-Gad R, Coffey A, Savarimalai R, Fortune DG, Ingen-Housz-Oro S

doi: 10.1093/bjd/ljae334

Systemic Lupus Erythematosus

Lived Education Experience of Young Adults with Childhood- and Adult-onset Systemic Lupus Erythematosus: A Multi-Centre Canadian Qualitative Study

J Rheumatol

Nishat F, Golding M, Merrill K, Protudjer JLP, Woodgate RL, Kaur R, Lacaille D, Oguzoglu U, Touma Z, Peschken C, Stinson JN, Lim LSH

doi: 10.3899/jrheum.2024-0695

Further Publications Dermatology

Growing up with juvenile vulvar lichen sclerosus, the experiences and care needs of adult women with lichen sclerosus since childhood: a qualitative exploration

Br J Dermatol

Morrel B, Kampherbeek JHJ, Ten Kate-Booij MJ, van der Avoort IAM, van Hees CLM, Wigny KMGJ, Burger CW, Pasmans SGMA, Lugtenberg M

doi: 10.1093/bjd/ljae203

Melanoma and Skin Cancer

Patient research priorities in melanoma: a national qualitative interview study

Br J Dermatol

Mistry K, Srimudkul O, Patel M, Ragan J, Karponis D, Venables ZC, Levell NJ

doi: 10.1093/bjd/ljaf048

Further Publications Rheumatology

Experiences with patient-initiated follow-up supported by asynchronous telemedicine in spondyloarthritis: a mixed methods study

Rheumatology (Oxford)

Smits ML, Hermans K, Boonen A, Vonkeman HE, Webers C, van Tubergen A

doi: 10.1093/rheumatology/keae650

Further Publications Dermatology

Long-term safety and efficacy of Oleogel-S10 (birch bark extract) in epidermolysis bullosa: 24-month results from the Phase III EASE Study

Br J Dermatol

Murrell DF, Bodemer C, Bruckner AL, Cunningham T, Davis C, Fernández MF, Kiritsi D, Maher L, Sprecher E, Torres Pradilla M, Kern JS

doi: 10.1093/bjd/ljaf022

Further Publications Immunology

The needed daily dose of colchicine in patients with Familial Mediterranean Fever may be higher in women: a study on behalf of the JIR cohort

Arthritis Res Ther

Di Cola I, Bartoli A, Savey L, Bensalek F, Delplanque M, Bourguiba R, Aknouche Z, Kone-Paut I, Rossi-Semerano L, Melki I, Bader-Meunier B, Neven B, Quartier P, Boursier G, Cuisset L, Grateau G, Hentgen V, Georgin-Lavialle S

doi: 10.1186/s13075-024-03440-4

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Qualitative interview study of rheumatology patients' experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs

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