Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Systemic Lupus Erythematosus

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Ann Rheum Dis

Sadun RE, Cooper JC, Belot A, Avcin T, Aggarwal A, Ainsworth J, Akinsete A, Ardoin SP, Beresford MW, Bortey L, Brunner HI, Chang JC, Ciurtin C, Daftary A, Eberhard B, Feldman CH, Hedrich CM, Hersh AO, Hiraki LT, Isenberg DA, Kamphuis S, Knight AM, Lambert L, Levy DM, Marks SD, Maxwell N, Migowa A, Moore K, Ozen S, Ramsey-Goldman R, Ravelli A, Reeve BB, Rubinstein TB, Saad-Magalhaes C, Sawhney S, Schanberg LE, von Scheven E, Scott C, Son MB, Tony G, Weitzman ER, Wenderfer SE, Woodside A, Lewandowski LB, Smith EM, CARRA SLE Committee and PReS Lupus Working Party

doi: 10.1136/ard-2024-226528

Systemic Lupus Erythematosus

Lived Education Experience of Young Adults with Childhood- and Adult-onset Systemic Lupus Erythematosus: A Multi-Centre Canadian Qualitative Study

J Rheumatol

Nishat F, Golding M, Merrill K, Protudjer JLP, Woodgate RL, Kaur R, Lacaille D, Oguzoglu U, Touma Z, Peschken C, Stinson JN, Lim LSH

doi: 10.3899/jrheum.2024-0695

Systemic Lupus ErythematosusSystemic Sclerosis

Menopausal hormone therapy and the risk of systemic lupus erythematosus and systemic sclerosis: a population-based nested case-control study

Rheumatology (Oxford)

Patasova K, Dehara M, Mantel Ä, Bixo M, Arkema E, Holmqvist M

doi: 10.1093/rheumatology/keaf004

Systemic Lupus Erythematosus

Incidence and risk of arterial and venous thrombotic events in Systemic Lupus Erythematosus patients: a population-based study

Rheumatology (Oxford)

Ojeda-Fernandez L, Calvisi S, Torrigiani G, Tettamanti M, Fortino I, Roncaglioni C, Baviera M

doi: 10.1093/rheumatology/keae496

Systemic Lupus Erythematosus

Efficacy and Safety of Sodium-Glucose Co-Transporter 2 Inhibitors for the Primary Prevention of Cardiovascular, Renal Events and Safety Outcomes in Patients with Systemic Lupus Erythematosus and Comorbid Type 2 Diabetes: A Population-based Target Trial Emulation

Arthritis Rheumatol

Ma KS, Lo JE, Kyttaris VC, Tsokos GC, Costenbader KH

doi: 10.1002/art.43037

Further Publications Rheumatology

Dry eye disease and spondyloarthritis: expanding the spectrum of systemic inflammatory disorders associated with ocular surface disease. Data from the international AIDA Network Spondyloarthritis Registry

Front Med (Lausanne)

Vitale A, Caggiano V, Martín-Nares E, Di Meglio N, Sica C, Hinojosa-Azaola A, Perfetti MO, Pagliara A, Guidetti G, Fonollosa A, Lopez R, Sbalchiero J, Sota J, Carreño E, Kawakami-Campos PA, Gentileschi S, de-la-Torre A, Tosi GM, Mazzei MA, Balistreri A, Frediani B, Cantarini L, Fabiani C

doi: 10.3389/fmed.2024.1422307

Further Publications Immunology

Racial Disparities and Achievement of the Low Lupus Disease Activity State (LLDAS): A CARRA Registry Study

Arthritis Care Res (Hoboken)

Soulsby WD, Olveda R, He J, Berbert L, Weller E, Barbour KE, Greenlund KJ, Schanberg LE, von Scheven E, Hersh A, Son MBF, Chang J, Knight A, CARRA Registry Investigators

doi: 10.1002/acr.25443

Further Publications Immunology

The HyperPed-COVID international registry: Impact of age of onset, disease presentation and geographical distribution on the final outcome of MIS-C

J Autoimmun

Caorsi R, Consolaro A, Speziani C, Sozeri B, Ulu K, Faugier-Fuentes E, Menchaca-Aguayo H, Ozen S, Sener S, Akhter Rahman S, Imnul Islam M, Haerynck F, Simonini G, Mastri MV, Avcin T, Sršen S, de Albuquerque Pedrosa Fernandes T, Stanevicha V, Vojinovic J, Sobh A, Fingerhutova S, Minxova L, Gagro A, Rodrigues Fonseca A, Pandya D, Varbanova B, Sánchez-Manubens J, Ganeva M, Montin D, Boyarchuk O, Minghini A, Bracaglia C, Brogan P, Candotti F, Cattalini M, Meyts I, Minoia F, Taddio A, Wouters C, De Benedetti F, Bovis F, Ravelli A, Ruperto N, Gattorno M, HyperPED-COVID study group, ERN-RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases), PReS (Pediatric Rheumatology European Society), ESID (European Society for Immunodeficiencies), ISSAID (International Society of Systemic Auto-Inflammatory Diseases) and the, **Paediatric Rheumatology International Trials Organisation (PRINTO), Bilginer Y, Laila K, Islam MM, Meertens B, Hoste L, Dehoorne J, Schelstraete P, Vandekerckhove K, Willems J, Matthijs I, Filocamo E Gisella Beatrice Beretta G, Magalhaes CS, Chubata O, Ricci F, Vukovic A, Temelkova K, Avramovic MZ, Emersic N, Bizjak M, Vesel T, Rodrigues MF, Gasparello de Almeida R, Lukjanovica K, Elnagdy MH, Soliman A, Terifajova E, Brejchova I, Magner M, Myrup C, Vougiouka O, Jelusic M, La Torre F, Rigante D, Maggio MC, Verdoni L, Rubio-Perez N, Cornejo GV, Villarreal Trevino AV, Brito I, Oliveira-Ramos F, Alexeeva E, Chasnyk V, Arkachaisri T, Boyko Y, Vyzhga Y, Samsonenko S

doi: 10.1016/j.jaut.2024.103265

Systemic Lupus Erythematosus

Clinical Presentation, Care Pathways, and Delays in Access to Specialized Care in Patients With Systemic Lupus Erythematosus: A Study From Lupus Midwest Network (LUMEN 💡)

Arthritis Care Res (Hoboken)

Sanchez-Rodriguez A, Meade-Aguilar JA, Yang JX, Figueroa-Parra G, Hanson AC, Langenfeld HE, Thanarajasingam U, Chamberlain AM, Greenlund KJ, Barbour KE, Crowson CS, Duarte-García A

doi: 10.1002/acr.25445

Related content

Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research

Lived Education Experience of Young Adults with Childhood- and Adult-onset Systemic Lupus Erythematosus: A Multi-Centre Canadian Qualitative Study

Menopausal hormone therapy and the risk of systemic lupus erythematosus and systemic sclerosis: a population-based nested case-control study

Incidence and risk of arterial and venous thrombotic events in Systemic Lupus Erythematosus patients: a population-based study

Efficacy and Safety of Sodium-Glucose Co-Transporter 2 Inhibitors for the Primary Prevention of Cardiovascular, Renal Events and Safety Outcomes in Patients with Systemic Lupus Erythematosus and Comorbid Type 2 Diabetes: A Population-based Target Trial Emulation

Dry eye disease and spondyloarthritis: expanding the spectrum of systemic inflammatory disorders associated with ocular surface disease. Data from the international AIDA Network Spondyloarthritis Registry

Racial Disparities and Achievement of the Low Lupus Disease Activity State (LLDAS): A CARRA Registry Study

The HyperPed-COVID international registry: Impact of age of onset, disease presentation and geographical distribution on the final outcome of MIS-C

Clinical Presentation, Care Pathways, and Delays in Access to Specialized Care in Patients With Systemic Lupus Erythematosus: A Study From Lupus Midwest Network (LUMEN 💡)